life update

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by

in

hi, sooo I had another seizure earlier this week lol

  1. I’m fine, just very tired and out of it (I have about enough energy to keep myself awake maybe ~10-12hr a day to sit in bed and rewatch the same 5 tv shows I’ve seen a million times already)
  2. my parents witnessed it so now we have an idea of what my seizures look like at least, so a +1 on collecting data
  3. my emergency medication works gr8 (thx for shoving it up my nose, Mom)
  4. Emmy is useless during a seizure (she just laid on the end of the bed and watched haha)

honestly since I started taking a higher dose of seizure meds last week, I’ve been exhausted but then having a seizure also knocks me out for at least a day or two and quite honestly at this point I don’t know if it’s the meds, the seizure(s), the change in weather, mercury in retrograde, or a combination of something else but I have been feeling all out of sorts – both physically and mentally. I know the med increase would make me more tired but it feels like I still haven’t fully bounced back yet from these last two seizures the past couple of weeks…

another thing I’ve been thinking about a lot is what could potentially be causing these seizures – and how the heck do I prevent them? bottom line, I think the main cause of my seizures is extreme stress/distress (emotionally, relationally, physically, medically, financially – all things I have experienced to very far extremes this year – it’s been a rollercoaster)

one thing that really sucks is that I’m really, really nervous about driving (or doing literally any of the other things I mentioned I shouldn’t be doing the other day) now more than ever and it feels like all of my independence was yanked out from under me. I can’t do or go anywhere by myself anymore. nothing and no where feels safe, but staying in my bed 24/7 drives me INSANE too

I know I need to focus on recovering and as much as I love rotting in bed, but I am SO bored. when I am not unconscious I am just trying to distract myself by rewatching the same handful of tv shows and movies (I’ve been rotating between Glee, Queer as Folk, South Park, and Arthur the last few days to give you an idea of my typical day lol) and also working on my various ongoing gallery and art (I have at least 70 projects in progress on Canva & like 40 posts drafted on this blog, slowly but surely lol)

Henry enjoys adventuring outside with me sometimes

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